Request / Find a Test Tool

The National Genomic Test Directories specify which genomic tests are commissioned by the NHS in England, to be delivered by Genomic Laboratory Hubs.

This tool allows clinical teams to search all of the genomic tests available to patients through the National Testing Directory. From here you can find out more details about each test and information about how to order them. These tests can only be ordered by clinical teams, if you are a patient looking to request a test please speak to your clinical team directly.

Hereditary neuropathy or pain disorder – NOT PMP22 copy number

Clinical Indication ID & Name

R78

Hereditary neuropathy or pain disorder – NOT PMP22 copy number

Test Group

Neurology

Test code

R78.2

Test name

N/A

Target genes

AR STR

Test scope

n/a

Test method/ technology

STR testing

Optimal Family Structure

n/a

Eligibility Criteria

Clinical features that indicate a likely hereditary neuropathy or pain disorder in whom PMP22 copy number abnormalities are clinically unlikely or have already been excluded

Test code

R78.4

Test name

N/A

Target genes

Hereditary neuropathy NOT PMP22 copy number (846)

Test scope

n/a

Test method/ technology

WGS

Optimal Family Structure

n/a

Eligibility Criteria

Clinical features that indicate a likely hereditary neuropathy or pain disorder in whom PMP22 copy number abnormalities are clinically unlikely or have already been excluded

Commissioning group

Specialised

Overlapping idications

• R77 Hereditary neuropathy - PMP22 copy number test should be used where PMP22 copy number abnormalities are possible • R89 Ultra-rare and atypical monogenic disorders or R27 Congenital malformation and dysmorphism syndromes – likely monogenic tests should be used in individuals with congenital malformations, dysmorphism or other complex or syndromic presentations

Address for samples/request forms

North Thames GLH, Rare & Inherited Disease Genomic Laboratory
Specimen Reception, Level 5 Barclay House, 37 Queen Square,
London WC1N 3BH

Contact with queries

gos-tr.norththamesgenomics@nhs.net

Supporting documents

Rare Disese WGS Clinician pack

Education resources

n/a

Service updates

n/a

Request form download

Consent record

See consent guidance in test request form

Sample requirements

See sample guidance in test request form