Request / Find a Test Tool

The National Genomic Test Directories specify which genomic tests are commissioned by the NHS in England, to be delivered by Genomic Laboratory Hubs.

This tool allows clinical teams to search all of the genomic tests available to patients through the National Testing Directory. From here you can find out more details about each test and information about how to order them. These tests can only be ordered by clinical teams, if you are a patient looking to request a test please speak to your clinical team directly.

Multiple monogenic benign skin tumours

Clinical Indication ID & Name

R230

Multiple monogenic benign skin tumours

Test Group

Dermatology

Test code

R230.1

Test name

N/A

Target genes

Multiple monogenic benign skin tumours (558)

Test scope

n/a

Test method/ technology

Small panel

Optimal Family Structure

n/a

Eligibility Criteria

Three or more benign skin tumours suggesting a diagnosis of any of the following conditions, with at least two histologically confirmed:
1. Familial cylindromatosis, OR
2. Brooke-Spiegler syndrome, OR
3. Multiple Familial Trichoepithelioma, OR
4. Muir-Torre syndrome, OR
5. Buschke-Ollendorff syndrome*, OR
6. Birt-Hogg-Dubé syndrome
*One skin biopsy may be sufficient to make a confident diagnosis

Test code

R230.2

Test name

N/A

Target genes

FLCN

Test scope

n/a

Test method/ technology

MLPA or equivalent

Optimal Family Structure

n/a

Eligibility Criteria

Three or more benign skin tumours suggesting a diagnosis of any of the following conditions, with at least two histologically confirmed:
1. Familial cylindromatosis, OR
2. Brooke-Spiegler syndrome, OR
3. Multiple Familial Trichoepithelioma, OR
4. Muir-Torre syndrome, OR
5. Buschke-Ollendorff syndrome*, OR
6. Birt-Hogg-Dubé syndrome
*One skin biopsy may be sufficient to make a confident diagnosis

Commissioning group

Specialised

Overlapping idications

n/a

Address for samples/request forms

North Thames GLH, Rare & Inherited Disease Genomic Laboratory
Specimen Reception, Level 5 Barclay House, 37 Queen Square,
London WC1N 3BH

Contact with queries

gos-tr.norththamesgenomics@nhs.net

Supporting documents

Rare Disese WGS Clinician pack

Education resources

n/a

Service updates

n/a

Request form download

Consent record

See consent guidance in test request form

Sample requirements

See sample guidance in test request form