Request / Find a Test Tool

The National Genomic Test Directories specify which genomic tests are commissioned by the NHS in England, to be delivered by Genomic Laboratory Hubs.

This tool allows clinical teams to search all of the genomic tests available to patients through the National Testing Directory. From here you can find out more details about each test and information about how to order them. These tests can only be ordered by clinical teams, if you are a patient looking to request a test please speak to your clinical team directly.

Short stature – SHOX deficiency

Clinical Indication ID & Name

R52

Short stature - SHOX deficiency

Test Group

Musculoskeletal

Test code

R52.1

Test name

N/A

Target genes

SHOX

Test scope

n/a

Test method/ technology

MLPA or equivalent

Optimal Family Structure

n/a

Eligibility Criteria

Disproportionate short stature with features in the patient or relatives suggestive of SHOX deficiency, e.g. Madelung deformity

Test code

R52.2

Test name

N/A

Target genes

SHOX

Test scope

n/a

Test method/ technology

Single gene sequencing <10 amplicons

Optimal Family Structure

n/a

Eligibility Criteria

Disproportionate short stature with features in the patient or relatives suggestive of SHOX deficiency, e.g. Madelung deformity

Commissioning group

Specialised

Overlapping idications

• R147 Growth failure in early childhood to be used for more significant/earlier onset short stature, including where Silver-Russell syndrome is the likely diagnosis • R382 Hypochondroplasia and R24 Achondroplasia • R104 Skeletal dysplasia to be used where clinical features indicative of a likely monogenic skeletal dysplasia

Address for samples/request forms

North Thames GLH, Rare & Inherited Disease Genomic Laboratory
Specimen Reception, Level 5 Barclay House, 37 Queen Square,
London WC1N 3BH

Contact with queries

gos-tr.norththamesgenomics@nhs.net

Supporting documents

Rare Disese WGS Clinician pack

Education resources

n/a

Service updates

n/a

Request form download

Consent record

See consent guidance in test request form

Sample requirements

See sample guidance in test request form